For those that do not know, after months of unexplained symptoms, and several doctor visits later,  July of 2022, we received the devastating news that Joel was diagnosed with ALS. 

 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal disease that slowly robs the body of its ability to walk, talk, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, at any age and there is still no known cause or cure for the disease. The financial burden can be devastating, costing loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. 

 

That's why we are walking. To build a future without ALS.  To bring help and hope to patients and families affected by this terrible disease, in the hopes that one day ALS is a disease of the past. 

 

Over the past few years, there have been advancements in ALS research, as well as expanded resources and access to care for people living with ALS.  

 

But now, more than ever, we need to keep the momentum going. As Joel would say, “Not a Moment to Lose”. We need to continue to push for more treatments and find a cure for ALS.

 

Please consider joining us at the walk, with our team, “Not A Moment To Lose”. We will walk and roll together, united with wheelchairs and scooters, families, neighbors and friends, strollers and pets – all are welcome!  If you can't make it to the walk, please consider making a donation. With your support, we can make a difference in the lives of people affected by this disease right here in North Carolina.