My beloved husband, Bryan,  was diagnosed with ALS  in September 2024 after noticing weakness in his right hand & shoulder. What a shock. Our world is rocked.

   Even though we shall all succumb to illness at some point, ALS is an especially daunting path for those with the disease as well as their loved ones who journey with them. Despite decades of research there remains no cure for this devastating and fatal disease. 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal disease that slowly robs the body of its ability to walk, talk, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, at any age and there is still no known cause or cure.

 

That's why I'm walking. To build a future without ALS.  To bring help and hope to patients and families affected by this terrible disease, in the hopes that one day ALS is a disease of the past. 

 

Over the past few years, there have been advancements in ALS research, as well as expanded resources and access to care for people living with ALS.  

 

But now, more than ever, we need to keep the momentum going.  We need to continue to push for more treatments and find a cure for ALS.

 

 

Please consider joining me at the walk - we will walk and roll together, united with wheelchairs and scooters, families, neighbors and friends, strollers and pets – all are welcome!  If you can't make it to the walk, please consider making a donation. With your support, we can make a difference in the lives of people affected by this disease right here in North Carolina.