Hi Friends and Family,


I am saddened to let everyone know that I was recently diagnosed with early-stage ALS. At this point it has only affected my voice, so we are hopeful that the condition will progress slowly. 


As you can imagine, this is quite a gut-punch. But I have decided to put my fundraising hat back on in support of ALS United, which seeks to make a positive difference in the lives of those with ALS and their families. We will be participating in the Greensboro ALS United walk on October 18, and I hope that many of you will support me in this walk, or better yet, join us. The team name is Barbara MacKay Vinson.


Below is more information from ALS United. 

 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal disease that slowly robs the body of its ability to walk, talk, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, at any age and there is still no known cause or cure.

 

That's why I'm walking. To build a future without ALS.  To bring help and hope to patients and families affected by this terrible disease, in the hopes that one day ALS is a disease of the past. 

 

Over the past few years, there have been advancements in ALS research, as well as expanded resources and access to care for people living with ALS.  

 

But now, more than ever, we need to keep the momentum going.  We need to continue to push for more treatments and find a cure for ALS.

 

Please consider joining me at the walk - we will walk and roll together, united with wheelchairs and scooters, families, neighbors and friends, strollers and pets – all are welcome!  If you can't make it to the walk, please consider making a donation. With your support, we can make a difference in the lives of people affected by this disease right here in North Carolina.